The Clinical_Trial_Recruiting.txt data file contains the transcripts from nine focus groups that examine the experiences of African American and Caribbean Black participants in being recruited for clinical research studies as well as from clinical research coordinators (CRC) about their experiences recruiting from these populations. The focus group guides for both the patient and CRC perspectives are presented at the end of the document. Additionally, demographic data, including race, ethnicity, age, gender, and education level are reported for both patients and CRCs in the file Demographics.csv.
Data are presented by focus group, with three focus groups from African American participants, three from Caribbean Black, one of which was specifically from Haitian Creole participants that was conducted in Creole and translated, and three focus groups from clinical research coordinators. Questions for the patient perspective include their experience participating in clinical trials, studies they would be more and less willing to join, perceptions of attitudes of community members and significant others, and best and worst communication practices during recruiting. Questions for clinical research coordinators asked about similarities and differences in recruitment and retention from different populations, approaches to explaining research terminology, and best and worst practices for communicating with African American and Black Caribbean populations during the recruiting process.