A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance

Maheen Abidi; David M Aboulafia; Melissa K Accordino; Jared D Acoba; Manmeet S Ahluwalia; Syed A Ahmad; Archana Ajmera; Saif I Alimohamed; Jessica Altman; Anne H Angevine; Ziad Bakouny; Michael H Bar; Aditya Bardia; Jill S Barnholtz-Sloan; Briana Barrow McCollough; Babar Bashir; Gerald Batist; Tanios S Bekaii-Saab; Stephanie Berg; Eric H Bernicker; Divaya Bhutani; Mehmet A Bilen; Poorva Bindal; Rohit Bishnoi; Sibel Blau; Pamela Bohachek; Genevieve Boland; Mark Bonnen; Gabrielle Bouchard; Nathaniel Bouganim; Daniel W Bowles; Fiona J Busser; Omar Butt; Angelo Cabal; Wilhelmina D Cabalona; Elwyn C Cabebe; Paolo Caimi; Jian L Campian; Theresa M Carducci; James L Chen; Alex Cheng; David D Chism; Toni K Choueiri; Melanie J Clark; Jessica M Clement; Jean M Connors; Erin Cook; Catherine R Curran; Ahmad Daher; Mark E Dailey; Elizabeth J Davis; Scott J Dawsey; John F Deeken; Salvatore A Del Prete; George D Demetri; Aakash Desai; Deborah B Doroshow; Eric B Durbin; Pamela C Egan; Rawad Elias; Arielle Elkrief; Destry J Elms; Amro Elshoury; Bryan Faller; Dimitrios Farmakiotis; Leslie A Fecher; Lawrence E Feldman; Cristiano Ferrario; Mark A Fiala; Daniel B Flora; Benjamin French; Christopher R Friese; Julie C Fu; Shirish M Gadgeel; Justin Gainor; Matthew D Galsky; Gerald Gantt; Jorge A Garcia; Benjamin A Gartrell; Margaret E Gatti-Mays; David M Gill; Erin A Gillaspie; Antonio Giordano; (Mary) Grace Glace; Michael J Glover; Sanjay Goel; Jerome J Graber; Elizabeth A Griffiths; Petros Grivas; Punita Grover; Anthony P Gulati; Shuchi Gulati; Shilpa Gupta; Michael Gurley; Navid Hafez; Susan Halabi; Thorvardur R Halfdanarson; Balazs Halmos; Daniel J Hausrath; Jessica E Hawley; Cassandra Hennessy; Roy S Herbst; Dawn L Hershman; Claire Hoppenot; Kent F Hoskins; Irma Hoyo-Ulloa; Emily Hsu; Chih-Yuan Hsu; Clara Hwang; Jessica Yasmine Islam; Salma K Jabbour; Chinmay Jani; Alokkumar Jha; Sachin R Jhawar; Douglas B Johnson; Monika Joshi; Anup Kasi; Kaitlin Kelleher; Hagen F Kennecke; Ali Raza Khaki; Hina Khan; Mahir Khan; Jordan Kharofa; Goetz Kloecker; Jeanna L Knoble; Amit A Kulkarni; Vaibhav Kumar; Philip E Lammers; John C Leighton; Christopher A Lemmon; Mark A Lewis; Ang Li; Xuanyi Li; Stephen V Liu; K.M Lo; Arturo Loaiza-Bonilla; Barbara B Logan; Elizabeth T Loggers; Gilberto de Lima Lopes; Jonathan M Loree; Patricia LoRusso; Clarke A Low; Maryam B Lustberg; Gary H Lyman; Ryan C Lynch; Subha Madhavan; Daruka Mahadevan; Sana Z Mahmood; Abdul-Hai Mansoor; Michelle Marcum; Merry-Jennifer Markham; Sandeep H Mashru; Tyler Masters; Blanche H Mavromatis; Rana R McKay; Christopher McNair; Shannon McWeeney; Alvaro G Menendez; Harry Menon; Ruben A Mesa; Vasil Mico; Chaim Miller; Sanjay Mishra; Ryan S Monahan; Alicia K Morgans; Mary F Mulcahy; Daniel Mundt; Sarah Mushtaq; Gayathri Nagaraj; Sarah Nagle; Elizabeth S Nakasone; John M Nakayama; Heather H Nelson; Eneida R Nemecek; Ryan H Nguyen; Amanda Nizam; Anju Nohria; Pier Vitale Nuzzo; Nitin Ohri; Adam J Olszewski; Susie Owenby; Corrie A Painter; Joshua D Palmer; Orestis A Panagiotou; Cathleen Park; Mary M Pasquinelli; Jaymin M Patel; Kanishka G Patel; Prakash Peddi; Nathan A Pennell; Solange Peters; Christine Pilar; Clement Pillainayagam; Matthew Puc; Amelie G Ramirez; Joerg Rathmann; Deepak Ravindranathan; Sonya A Reid; Daniel Y Reuben; Sanjay G Revankar; Kerry L Reynolds; Young Soo Rho; Terence D Rhodes; Robert L Rice; Jonathan Riess; Brian I Rini; Cameron Rink; Lane R Rosen; Lori J Rosenstein; Rachel P Rosovsky; Bertrand Routy; Marc A Rovito; Samuel M Rubinstein; M. Wasif Saif; Mary Salazar; Miriam Santos Dutra; Lidia Schapira; Andrew L Schmidt; Brett A Schroeder; Gary K Schwartz; Candice Schwartz; Michael T Schweizer; Oscar K Serrano; Danielle A Shafer; Pankil K Shah; Dimpy Shah; Mansi R Shah; Sumit A Shah; Chintan Shah; Grace Shaw; Justin A Shaya; Yu Shyr; David A Slosky; Melissa Smits; Carmen C Solorzano; Karen Stauffer; Keith E Stockerl-Goldstein; Daniel G Stover; Jamie Stratton; Catherine Stratton; Mitrianna Streckfuss; Suki Subbiah; Lisa Tachiki; Eyob Tadesse; Michael A Thompson; Umit Topaloglu; Matthew D Tucker; Eliezer M Van Allen; Susan Van Loon; Karen Vega-Luna; Neeta K Venepalli; Amit Verma; Praveen Vikas; Shaveta Vinayak; Donald C Vinh; Michael J Wagner; Sarah Wall; Lucy L Wang; Jeremy L Warner; Firas H Wehbe; Paul L Weinstein; Matthias Weiss; Lisa B Weissmann; Tanya M Wildes; Nicole Williams; Trisha M Wise-Draper; William A Wood; Julie Tsu-Yu Wu; Elizabeth M Wulff-Burchfield; Zhuoer Xie; Wenxin Xu; Albert C Yeh; Irene S Yu; Peter Paul Yu; Rosemary Zacks; Qamar Ul Zaman; Howard Zaren; Tian Zhang; Alice Y Zhou; Huili Zhu; Rebecca L Zon; Leyre Zubiri; The COVID-19 and Cancer Consortium

doi:10.1016/j.ccell.2020.10.022

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A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance

Journal article

Open access

Peer reviewed

A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance

Maheen Abidi, David M Aboulafia, Melissa K Accordino, Jared D Acoba, Manmeet S Ahluwalia, Syed A Ahmad, Archana Ajmera, Saif I Alimohamed, Jessica Altman, Anne H Angevine, …

Cancer cell, Vol.38(6), pp.761-766

2020-12-14

DOI: https://doi.org/10.1016/j.ccell.2020.10.022

PMID: 33176160

Abstract

When the COVID-19 pandemic began, formal frameworks to collect data about affected patients were lacking. The COVID-19 and Cancer Consortium (CCC19) was formed to collect granular data on patients with cancer and COVID-19 at scale and as rapidly as possible. CCC19 has grown from five initial institutions to 125 institutions with >400 collaborators. More than 5,000 cases with complete baseline data have been accrued. Future directions include increased electronic health record integration for direct data ingestion, expansion to additional domestic and international sites, more intentional patient involvement, and granular analyses of still-unanswered questions related to cancer subtypes and treatments. When the COVID-19 pandemic began, formal frameworks to collect data about affected patients were lacking. The COVID-19 and Cancer Consortium (CCC19) was formed to collect granular data on patients with cancer and COVID-19 at scale and as rapidly as possible. CCC19 has grown from five initial institutions to 125 institutions with >400 collaborators. More than 5,000 cases with complete baseline data have been accrued. Future directions include increased electronic health record integration for direct data ingestion, expansion to additional domestic and international sites, more intentional patient involvement, and granular analyses of still-unanswered questions related to cancer subtypes and treatments.

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Citation topics: 1 Clinical & Life Sciences; 1.104 Virology - General; 1.104.1353 Coronavirus
Web Of Science research areas: Cell Biology; Oncology
ESI research areas: Molecular Biology & Genetics

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Title: A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance
Creators: Maheen Abidi
David M Aboulafia
Melissa K Accordino
Jared D Acoba
Manmeet S Ahluwalia
Syed A Ahmad
Archana Ajmera
Saif I Alimohamed
Jessica Altman
Anne H Angevine
Ziad Bakouny
Michael H Bar
Aditya Bardia
Jill S Barnholtz-Sloan
Briana Barrow McCollough
Babar Bashir
Gerald Batist
Tanios S Bekaii-Saab
Stephanie Berg
Eric H Bernicker
Divaya Bhutani
Mehmet A Bilen
Poorva Bindal
Rohit Bishnoi
Sibel Blau
Pamela Bohachek
Genevieve Boland
Mark Bonnen
Gabrielle Bouchard
Nathaniel Bouganim
Daniel W Bowles
Fiona J Busser
Omar Butt
Angelo Cabal
Wilhelmina D Cabalona
Elwyn C Cabebe
Paolo Caimi
Jian L Campian
Theresa M Carducci
James L Chen
Alex Cheng
David D Chism
Toni K Choueiri - Harvard University
Melanie J Clark
Jessica M Clement
Jean M Connors
Erin Cook
Catherine R Curran
Ahmad Daher
Mark E Dailey
Elizabeth J Davis
Scott J Dawsey
John F Deeken
Salvatore A Del Prete
George D Demetri
Aakash Desai - Case Western Reserve University
Deborah B Doroshow
Eric B Durbin
Pamela C Egan
Rawad Elias
Arielle Elkrief - McGill University
Destry J Elms
Amro Elshoury
Bryan Faller
Dimitrios Farmakiotis - Brown University
Leslie A Fecher
Lawrence E Feldman
Cristiano Ferrario
Mark A Fiala
Daniel B Flora
Benjamin French
Christopher R Friese
Julie C Fu
Shirish M Gadgeel
Justin Gainor
Matthew D Galsky
Gerald Gantt
Jorge A Garcia
Benjamin A Gartrell
Margaret E Gatti-Mays
David M Gill
Erin A Gillaspie
Antonio Giordano
(Mary) Grace Glace
Michael J Glover
Sanjay Goel
Jerome J Graber
Elizabeth A Griffiths
Petros Grivas
Punita Grover
Anthony P Gulati
Shuchi Gulati
Shilpa Gupta
Michael Gurley
Navid Hafez
Susan Halabi
Thorvardur R Halfdanarson
Balazs Halmos
Daniel J Hausrath
Jessica E Hawley
Cassandra Hennessy
Roy S Herbst
Dawn L Hershman
Claire Hoppenot
Kent F Hoskins
Irma Hoyo-Ulloa
Emily Hsu
Chih-Yuan Hsu
Clara Hwang
Jessica Yasmine Islam
Salma K Jabbour
Chinmay Jani
Alokkumar Jha
Sachin R Jhawar
Douglas B Johnson
Monika Joshi
Anup Kasi
Kaitlin Kelleher
Hagen F Kennecke
Ali Raza Khaki
Hina Khan
Mahir Khan
Jordan Kharofa
Goetz Kloecker
Jeanna L Knoble
Amit A Kulkarni
Vaibhav Kumar
Philip E Lammers
John C Leighton
Christopher A Lemmon
Mark A Lewis
Ang Li
Xuanyi Li
Stephen V Liu
K.M Lo
Arturo Loaiza-Bonilla
Barbara B Logan
Elizabeth T Loggers
Gilberto de Lima Lopes
Jonathan M Loree
Patricia LoRusso
Clarke A Low
Maryam B Lustberg
Gary H Lyman
Ryan C Lynch
Subha Madhavan
Daruka Mahadevan
Sana Z Mahmood
Abdul-Hai Mansoor
Michelle Marcum
Merry-Jennifer Markham
Sandeep H Mashru
Tyler Masters
Blanche H Mavromatis
Rana R McKay
Christopher McNair
Shannon McWeeney
Alvaro G Menendez
Harry Menon
Ruben A Mesa
Vasil Mico
Chaim Miller
Sanjay Mishra
Ryan S Monahan
Alicia K Morgans
Mary F Mulcahy
Daniel Mundt
Sarah Mushtaq
Gayathri Nagaraj
Sarah Nagle
Elizabeth S Nakasone
John M Nakayama
Heather H Nelson
Eneida R Nemecek
Ryan H Nguyen
Amanda Nizam
Anju Nohria
Pier Vitale Nuzzo
Nitin Ohri
Adam J Olszewski
Susie Owenby
Corrie A Painter
Joshua D Palmer
Orestis A Panagiotou
Cathleen Park
Mary M Pasquinelli
Jaymin M Patel
Kanishka G Patel
Prakash Peddi
Nathan A Pennell
Solange Peters
Christine Pilar
Clement Pillainayagam
Matthew Puc
Amelie G Ramirez
Joerg Rathmann
Deepak Ravindranathan
Sonya A Reid
Daniel Y Reuben
Sanjay G Revankar
Kerry L Reynolds
Young Soo Rho
Terence D Rhodes
Robert L Rice
Jonathan Riess
Brian I Rini
Cameron Rink
Lane R Rosen
Lori J Rosenstein
Rachel P Rosovsky
Bertrand Routy
Marc A Rovito
Samuel M Rubinstein
M. Wasif Saif
Mary Salazar
Miriam Santos Dutra
Lidia Schapira
Andrew L Schmidt
Brett A Schroeder
Gary K Schwartz
Candice Schwartz
Michael T Schweizer
Oscar K Serrano
Danielle A Shafer
Pankil K Shah
Dimpy Shah
Mansi R Shah
Sumit A Shah
Chintan Shah
Grace Shaw
Justin A Shaya
Yu Shyr
David A Slosky
Melissa Smits
Carmen C Solorzano
Karen Stauffer
Keith E Stockerl-Goldstein
Daniel G Stover
Jamie Stratton
Catherine Stratton
Mitrianna Streckfuss
Suki Subbiah
Lisa Tachiki
Eyob Tadesse
Michael A Thompson
Umit Topaloglu
Matthew D Tucker
Eliezer M Van Allen
Susan Van Loon
Karen Vega-Luna
Neeta K Venepalli
Amit Verma
Praveen Vikas
Shaveta Vinayak
Donald C Vinh
Michael J Wagner
Sarah Wall
Lucy L Wang
Jeremy L Warner
Firas H Wehbe
Paul L Weinstein
Matthias Weiss
Lisa B Weissmann
Tanya M Wildes
Nicole Williams
Trisha M Wise-Draper
William A Wood
Julie Tsu-Yu Wu
Elizabeth M Wulff-Burchfield
Zhuoer Xie
Wenxin Xu
Albert C Yeh
Irene S Yu
Peter Paul Yu
Rosemary Zacks
Qamar Ul Zaman
Howard Zaren
Tian Zhang
Alice Y Zhou
Huili Zhu
Rebecca L Zon
Leyre Zubiri
The COVID-19 and Cancer Consortium
Publication Details: Cancer cell, Vol.38(6), pp.761-766
Publisher: Elsevier Inc
Academic Unit: Miller School of Medicine; UMMG Dept of Medicine - Hematology/Oncology; UMMG Dept of Family Medicine & Community Health
Language: English
Resource Type: Journal article
PMID: 33176160
Record Identifier: 991031713338402976