Addressing underrepresentation in genomics research through community engagement

Amy A. Lemke; Edward D. Esplin; Aaron J. Goldenberg; Claudia Gonzaga-Jauregui; Neil A. Hanchard; Julie Harris-Wai; Justin E. Ideozu; Rosario Isasi; Andrew P. Landstrom; Anya E. R. Prince; Erin Turbitt; Maya Sabatello; Samantha A. Schrier Vergano; Matthew R. G. Taylor; Joon-Ho Yu; Kyle B. Brothers; Nanibaa' A. Garrison

doi:10.1016/j.ajhg.2022.08.005

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Addressing underrepresentation in genomics research through community engagement

Journal article

Peer reviewed

Addressing underrepresentation in genomics research through community engagement

Amy A. Lemke, Edward D. Esplin, Aaron J. Goldenberg, Claudia Gonzaga-Jauregui, Neil A. Hanchard, Julie Harris-Wai, Justin E. Ideozu, Rosario Isasi, Andrew P. Landstrom, Anya E. R. Prince, …

American journal of human genetics, Vol.109(9), pp.1563-1571

2022-09-01

DOI: https://doi.org/10.1016/j.ajhg.2022.08.005

PMID: 36055208

Appears in Miller School of Medicine - Latest Publications

Abstract

Genetics & Heredity

Life Sciences & Biomedicine

Science & Technology

The vision of the American Society of Human Genetics (ASHG) is that people everywhere will realize the benefits of human genetics and genomics. Implicit in that vision is the importance of ensuring that the benefits of human genetics and genomics research are realized in ways that minimize harms and maximize benefits, a goal that can only be achieved through focused efforts to address health inequities and increase the representation of underrepresented communities in genetics and genomics research. This guidance is intended to advance community engagement as an approach that can be used across the research lifecycle. Community engagement uniquely offers researchers in human genetics and genomics an opportunity to pursue that vision successfully, including by addressing underrepresen-tation in genomics research.

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Collaboration types: Domestic collaboration; International collaboration
Citation topics: 1 Clinical & Life Sciences; 1.155 Medical Ethics; 1.155.598 Informed Consent
Web Of Science research areas: Genetics & Heredity
ESI research areas: Molecular Biology & Genetics

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Details

Title: Addressing underrepresentation in genomics research through community engagement
Creators: Amy A. Lemke - American Society of Human Genetics
Edward D. Esplin - American Soc Human Genet, Profess Practice & Social Implicat Comm, Rockville, MD 20852 USA
Aaron J. Goldenberg - Amer Soc Human Genet, Profess Practice & Social Implicat Community Enga, Rockville, MD 20852 USA
Claudia Gonzaga-Jauregui - Amer Soc Human Genet, Profess Practice & Social Implicat Community Enga, Rockville, MD 20852 USA
Neil A. Hanchard - Amer Soc Human Genet, Profess Practice & Social Implicat Community Enga, Rockville, MD 20852 USA
Julie Harris-Wai - Amer Soc Human Genet, Profess Practice & Social Implicat Community Enga, Rockville, MD 20852 USA
Justin E. Ideozu - American Soc Human Genet, Profess Practice & Social Implicat Comm, Rockville, MD 20852 USA
Rosario Isasi - Amer Soc Human Genet, Profess Practice & Social Implicat Community Enga, Rockville, MD 20852 USA
Andrew P. Landstrom - American Soc Human Genet, Profess Practice & Social Implicat Comm, Rockville, MD 20852 USA
Anya E. R. Prince - Amer Soc Human Genet, Profess Practice & Social Implicat Community Enga, Rockville, MD 20852 USA
Erin Turbitt - American Soc Human Genet, Profess Practice & Social Implicat Comm, Rockville, MD 20852 USA
Maya Sabatello - Amer Soc Human Genet, Profess Practice & Social Implicat Community Enga, Rockville, MD 20852 USA
Samantha A. Schrier Vergano - American Soc Human Genet, Profess Practice & Social Implicat Comm, Rockville, MD 20852 USA
Matthew R. G. Taylor - American Soc Human Genet, Profess Practice & Social Implicat Comm, Rockville, MD 20852 USA
Joon-Ho Yu - Amer Soc Human Genet, Profess Practice & Social Implicat Community Enga, Rockville, MD 20852 USA
Kyle B. Brothers - American Soc Human Genet, Profess Practice & Social Implicat Comm, Rockville, MD 20852 USA
Nanibaa' A. Garrison - American Soc Human Genet, Profess Practice & Social Implicat Comm, Rockville, MD 20852 USA
Publication Details: American journal of human genetics, Vol.109(9), pp.1563-1571
Publisher: Elsevier
Number of pages: 9
Academic Unit: Miller School of Medicine; UMMG Dept of Human Genetics (Dr. John T. Macdonald Foundation); John P. Hussman Institute for Human Genomics
Language: English
Resource Type: Journal article
PMID: 36055208
Record Identifier: 991031785544402976