Development of a pain education resource for people with spinal cord injury

Eva Widerström-Noga; Kimberly D. Anderson; Linda E. Robayo; Salome Perez; Alberto Martinez-Arizala; Lindsey Calle-Coule; Nicholas P. Cherup; Gabriel E. Fernandez

doi:10.3389/fpubh.2023.1197944

Development of a pain education resource for people with spinal cord injury

Eva Widerström-Noga, Eva Widerström-Noga, Kimberly D. Anderson, Linda E. Robayo, Salome Perez, Alberto Martinez-Arizala, Lindsey Calle-Coule, Nicholas P. Cherup Gabriel E. Fernandez

Frontiers in public health, Vol.11

2023-07-01

: https://doi.org/10.3389/fpubh.2023.1197944

neuropathic pain

pain education

pain management

Chronic Pain

Spinal Cord Injury

Many people with spinal cord injury (SCI) develop chronic pain, including neuropathic pain. Unfortunately, current treatments for this condition are often inadequate because SCI-associated neuropathic pain is complex and depends on various underlying mechanisms and contributing factors. Multimodal treatment strategies including but not limited to pharmacological treatments, physical rehabilitation, cognitive training, and pain education may be best suited to manage pain in this population. In this study, we developed an educational resource named the SeePain based on published pain literature, and direct stakeholder input, including people living with SCI and chronic pain, their significant others, and healthcare providers with expertise in SCI. The SeePain was then 1) systematically evaluated by stakeholders regarding its content, comprehensibility, and format using qualitative interviews and thematic analysis, and 2) modified based on their perspectives. The final resource is a comprehensive guide for people with SCI and their significant others or family members that is intended to increase health literacy and facilitate communication between SCI consumers and their healthcare providers. Future work will quantitatively validate the SeePain in a large SCI sample.

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research.portal.fulldisplay.incitesHighlights.intro

esploro.research.conf.research.portal.label.prefix.inciteCollaboration: research.portal.fulldisplay.incitesHighlights.institutionCollaboration
esploro.research.conf.research.portal.label.prefix.inciteCitationTopics: 1 Clinical & Life Sciences; 1.82 Gait & Posture; 1.82.1298 Spinal Cord Injury Rehabilitation
esploro.research.conf.research.portal.label.prefix.inciteWOSResearchAreas: Public, Environmental & Occupational Health
esploro.research.conf.research.portal.label.prefix.inciteESIResearchAreas: Social Sciences, general

: Development of a pain education resource for people with spinal cord injury
: Eva Widerström-Noga - The Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United States
Eva Widerström-Noga - Department of Neurological Surgery, University of Miami Miller School of Medicine, Miami, FL, United States
Kimberly D. Anderson - Case Western Reserve University
Linda E. Robayo - University of Miami Miller School of Medicine (United States, Miami)
Salome Perez - Research Service, Bruce W. Carter Veterans Affairs Medical Center, Miami, FL, United States
Alberto Martinez-Arizala - The Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United States
Lindsey Calle-Coule - Research Service, Bruce W. Carter Veterans Affairs Medical Center, Miami, FL, United States
Nicholas P. Cherup - University of Miami Miller School of Medicine (United States, Miami)
Gabriel E. Fernandez - The Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United States
: Frontiers in public health, Vol.11
: Frontiers Media S.A
: APC covered by University of Miami Libraries
: UMMG Dept of Neurological Surgery; Miller School of Medicine; UMMG Department of Neurology; Miami Project to Cure Paralysis
: English
: Journal article
: 991031920076902976