National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease: Interest and Barriers

E. Ray Dorsey; Meredith A Achey; Christopher A Beck; Denise B Beran; Kevin M Biglan; Cynthia M Boyd; Peter N Schmidt; Richard Simone; Allison W Willis; Nicholas B Galifianakis; Maya Katz; Caroline M Tanner; Kristen Dodenhoff; Nathan Ziman; Jason Aldred; Julie Carter; Joohi Jimenez-Shahed; Christine Hunter; Meredith Spindler; Zoltan Mari; John C Morgan; Dedi McLane; Patrick Hickey; Lisa Gauger; Irene Hegeman Richard; Michael T Bull; Nicte I Mejia; Grace Bwala; Martha Nance; Ludy Shih; Lauren Anderson; Carlos Singer; Cindy Zadikoff; Natalia Okon; Andrew Feigin; Jean Ayan; Christina Vaughan; Rajesh Pahwa; Jessica Cooper; Sydney Webb; Rohit Dhall; Anhar Hassan; Delana Weis; Steven DeMello; Sara S Riggare; Paul Wicks; Joseph Smith; H. Tait Keenan; Ryan Korn; Heidi Schwarz; Saloni Sharma; E. Anna Stevenson; William Zhu

doi:10.1089/tmj.2015.0191

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National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease: Interest and Barriers

Journal article

Open access

Peer reviewed

National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease: Interest and Barriers

E. Ray Dorsey, Meredith A Achey, Christopher A Beck, Denise B Beran, Kevin M Biglan, Cynthia M Boyd, Peter N Schmidt, Richard Simone, Allison W Willis, Nicholas B Galifianakis, …

Telemedicine journal and e-health, Vol.22(7), pp.59-598

2016-07-01

DOI: https://doi.org/10.1089/tmj.2015.0191

PMCID: PMC4939367

PMID: 26886406

Abstract

Original Research

Background: Delivering specialty care remotely directly into people's homes can enhance access for and improve the healthcare of individuals with chronic conditions. However, evidence supporting this approach is limited. Materials and Methods: Connect.Parkinson is a randomized comparative effectiveness study that compares usual care of individuals with Parkinson's disease in the community with usual care augmented by virtual house calls with a Parkinson's disease specialist from 1 of 18 centers nationally. Individuals in the intervention arm receive four virtual visits from a Parkinson's disease specialist over 1 year via secure, Web-based videoconferencing directly into their homes. All study activities, including recruitment, enrollment, and assessments, are conducted remotely. Here we report on interest, feasibility, and barriers to enrollment in this ongoing study. Results: During recruitment, 11,734 individuals visited the study's Web site, and 927 unique individuals submitted electronic interest forms. Two hundred ten individuals from 18 states enrolled in the study from March 2014 to June 2015, and 195 were randomized. Most participants were white (96%) and college educated (73%). Of the randomized participants, 73% had seen a Parkinson's disease specialist within the previous year. Conclusions: Among individuals with Parkinson's disease, national interest in receiving remote specialty care directly into the home is high. Remote enrollment in this care model is feasible but is likely affected by differential access to the Internet.

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Collaboration types: Domestic collaboration; International collaboration
Citation topics: 1 Clinical & Life Sciences; 1.52 Neurodegenerative Diseases; 1.52.67 Parkinson's Disease
Web Of Science research areas: Health Care Sciences & Services
ESI research areas: Clinical Medicine

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Title: National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease: Interest and Barriers
Creators: E. Ray Dorsey - 2CHET, University of Rochester Medical Center, Rochester, New York
Meredith A Achey - 3Duke University School of Medicine, Durham, North Carolina
Christopher A Beck - 4Department of Biostatistics, University of Rochester, Rochester, New York
Denise B Beran - 5National Parkinson Foundation, Miami, Florida
Kevin M Biglan - 1Department of Neurology, Rochester, New York
Cynthia M Boyd - 6Division of Geriatric Medicine and Gerontology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland
Peter N Schmidt - 5National Parkinson Foundation, Miami, Florida
Richard Simone - 7Simone Consulting, Sunnyvale, California
Allison W Willis - 9Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania
Nicholas B Galifianakis - 10Department of Neurology, University of California San Francisco, San Francisco, California
Maya Katz - 10Department of Neurology, University of California San Francisco, San Francisco, California
Caroline M Tanner - 10Department of Neurology, University of California San Francisco, San Francisco, California
Kristen Dodenhoff - 10Department of Neurology, University of California San Francisco, San Francisco, California
Nathan Ziman - 10Department of Neurology, University of California San Francisco, San Francisco, California
Jason Aldred - 11Northwest Neurological, PLLC, Spokane, Washington
Julie Carter - 12Parkinson Center and Movement Disorders Program, Oregon Health and Science University, Portland, Oregon
Joohi Jimenez-Shahed - 13Department of Neurology, Baylor College of Medicine, Houston, Texas
Christine Hunter - 13Department of Neurology, Baylor College of Medicine, Houston, Texas
Meredith Spindler - 8Department of Neurology, Philadelphia, Pennsylvania
Zoltan Mari - 14Department of Neurology and Neurosurgery, Johns Hopkins University, Baltimore, Maryland
John C Morgan - 15Department of Neurology, Georgia Regents University, Augusta, Georgia
Dedi McLane - 15Department of Neurology, Georgia Regents University, Augusta, Georgia
Patrick Hickey - 16Department of Neurology, Duke Medical Center, Durham, North Carolina
Lisa Gauger - 16Department of Neurology, Duke Medical Center, Durham, North Carolina
Irene Hegeman Richard - 1Department of Neurology, Rochester, New York
Michael T Bull - 1Department of Neurology, Rochester, New York
Nicte I Mejia - 17Department of Neurology, Massachusetts General Hospital, Boston, Massachusetts
Grace Bwala - 17Department of Neurology, Massachusetts General Hospital, Boston, Massachusetts
Martha Nance - 18Struthers Parkinson's Center, Golden Valley, Minnesota
Ludy Shih - 19Department of Neurology, Beth Israel Deaconess Medical Center, Boston, Massachusetts
Lauren Anderson - 19Department of Neurology, Beth Israel Deaconess Medical Center, Boston, Massachusetts
Carlos Singer - 20Department of Neurology, University of Miami, Miami, Florida
Cindy Zadikoff - 21Department of Neurology, Northwestern University, Evanston, Illinois
Natalia Okon - 21Department of Neurology, Northwestern University, Evanston, Illinois
Andrew Feigin - 22The Feinstein Institute for Medical Research, North Shore-LIJ Health System, Manhasset, New York
Jean Ayan - 22The Feinstein Institute for Medical Research, North Shore-LIJ Health System, Manhasset, New York
Christina Vaughan - 23Department of Neurology, Medical University of South Carolina, Charleston, South Carolina
Rajesh Pahwa - 24Department of Neurology, University of Kansas Medical Center, Kansas City, Kansas
Jessica Cooper - 24Department of Neurology, University of Kansas Medical Center, Kansas City, Kansas
Sydney Webb - 24Department of Neurology, University of Kansas Medical Center, Kansas City, Kansas
Rohit Dhall - 25Parkinson's Institute, Sunnyvale, California
Anhar Hassan - 26Department of Neurology, Mayo Clinic, Rochester, Minnesota
Delana Weis - 26Department of Neurology, Mayo Clinic, Rochester, Minnesota
Steven DeMello - 27Center for Information Technology Research in the Interest of Society, University of California, Berkeley, California
Sara S Riggare - 28Health Informatics Centre, Karolinska Institute, Stockholm, Sweden
Paul Wicks - 29PatientsLikeMe, Cambridge, Massachusetts
Joseph Smith - 30West Health Institute, La Jolla, California
H. Tait Keenan - 2CHET, University of Rochester Medical Center, Rochester, New York
Ryan Korn - 2CHET, University of Rochester Medical Center, Rochester, New York
Heidi Schwarz - 1Department of Neurology, Rochester, New York
Saloni Sharma - 2CHET, University of Rochester Medical Center, Rochester, New York
E. Anna Stevenson - 2CHET, University of Rochester Medical Center, Rochester, New York
William Zhu - 2CHET, University of Rochester Medical Center, Rochester, New York
Publication Details: Telemedicine journal and e-health, Vol.22(7), pp.59-598
Publisher: Mary Ann Liebert, Inc
Academic Unit: Miller School of Medicine; UMMG Department of Neurology
Language: English
Resource Type: Journal article
PMID: 26886406
PMCID: PMC4939367
Record Identifier: 991031578379002976