Redefining Palliative Care—A New Consensus-Based Definition

Lukas Radbruch; Liliana De Lima; Felicia Knaul; Roberto Wenk; Zipporah Ali; Sushma Bhatnaghar; Charmaine Blanchard; Eduardo Bruera; Rosa Buitrago; Claudia Burla; Mary Callaway; Esther Cege Munyoro; Carlos Centeno; Jim Cleary; Stephen Connor; Odontuya Davaasuren; Julia Downing; Kathleen Foley; Cynthia Goh; Wendy Gomez-Garcia; Richard Harding; Quach T Khan; Phillippe Larkin; Mhoira Leng; Emmanuel Luyirika; Joan Marston; Sebastien Moine; Hibah Osman; Katherine Pettus; Christina Puchalski; M.R Rajagopal; Dingle Spence; Odette Spruijt; Chitra Venkateswaran; Bee Wee; Roger Woodruff; Jinsun Yong; Tania Pastrana

doi:10.1016/j.jpainsymman.2020.04.027

Back

Redefining Palliative Care—A New Consensus-Based Definition

Journal article

Open access

Peer reviewed

Redefining Palliative Care—A New Consensus-Based Definition

Lukas Radbruch, Liliana De Lima, Felicia Knaul, Roberto Wenk, Zipporah Ali, Sushma Bhatnaghar, Charmaine Blanchard, Eduardo Bruera, Rosa Buitrago, Claudia Burla, …

Journal of pain and symptom management, Vol.60(4), pp.754-764

2020-10

DOI: https://doi.org/10.1016/j.jpainsymman.2020.04.027

PMID: 32387576

Abstract

consensus

low or middle income countries

quality of life

relief of suffering

Definition of palliative care

Delphi method

The International Association for Hospice and Palliative Care developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health-related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief. The main objective of this article is to present the research behind the new definition. The three-phased consensus process involved health care workers from countries in all income levels. In Phase 1, 38 PC experts evaluated the components of the World Health Organization definition and suggested new/revised ones. In Phase 2, 412 International Association for Hospice and Palliative Care members in 88 countries expressed their level of agreement with the suggested components. In Phase 3, using results from Phase 2, the expert panel developed the definition. The consensus-based definition is as follows: Palliative care is the active holistic care of individuals across all ages with serious health-related suffering due to severe illness and especially of those near the end of life. It aims to improve the quality of life of patients, their families and their caregivers. The definition includes a number of bullet points with additional details as well as recommendations for governments to reduce barriers to PC. Participants had significantly different perceptions and interpretations of PC. The greatest challenge faced by the core group was trying to find a middle ground between those who think that PC is the relief of all suffering and those who believe that PC describes the care of those with a very limited remaining life span.

Files and links (1)

url

https://doi.org/10.1016/j.jpainsymman.2020.04.027View

Published (Version of record) Open

Metrics

130 Record Views

348 Times Cited - Web of Science

See more details

InCites Highlights

These are selected metrics from InCites Benchmarking & Analytics tool, related to this output

Highly Cited Paper

Collaboration types: Domestic collaboration; International collaboration
Citation topics: 1 Clinical & Life Sciences; 1.112 Palliative Care; 1.112.237 Palliative Care
Web Of Science research areas: Clinical Neurology; Health Care Sciences & Services
ESI research areas: Neuroscience & Behavior

UN Sustainable Development Goals (SDGs)

This output has contributed to the advancement of the following goals:

Source: InCites

Details

Title: Redefining Palliative Care—A New Consensus-Based Definition
Creators: Lukas Radbruch - Department of Palliative Medicine, University Hospital Bonn, Bonn, Germany
Liliana De Lima - International Association for Hospice and Palliative Care, Houston, Texas, USA
Felicia Knaul - University of Miami Institute for Advanced Study of the Americas, Coral Gables, Florida, USA
Roberto Wenk - San Nicolash, Argentina
Zipporah Ali - Kenian Hospice and Palliative Care Association, Nairobi, Kenya
Sushma Bhatnaghar - Department of Onco-Anaesthesia and Palliative Medicine, All India Institute of Medical Sciences, New Delhi, India
Charmaine Blanchard - Wits Centre for Palliative Care, University of the Witwatersrand Johannesburg, Johannesburg, South Africa
Eduardo Bruera - Department of Palliative Rehabilitation and Integrative Medicine, MD Anderson Cancer Center Houston, Houston, Texas, USA
Rosa Buitrago - School of Pharmacy, University of Panama, Panama City, Panama
Claudia Burla - Private Practice, Rio de Janeiro, Brazil
Mary Callaway - New York, New York, USA
Esther Cege Munyoro - Pain and Palliative Care Unit, Kenyatta National Hospital, Nairobi, Kenya
Carlos Centeno - Department of Palliative Medicine, Clinica Universidad de Navarra, Navarra, Spain
Jim Cleary - Department of Medicine, IU Simon Cancer Center, IU School of Medicine, Indianapolis, Indiana, USA
Stephen Connor - Worldwide Hospice Palliative Care Alliance, London, United Kingdom
Odontuya Davaasuren - General Practice and Basic Skills Department, Mongolian National University of Medical Sciences, Ulaanbaatar, Mongolia
Julia Downing - International Children's Palliative Care Network, Cape town, South Africa
Kathleen Foley - New York, New York, USA
Cynthia Goh - Division of Palliative Medicine at the National Cancer Centre Singapore, Singapore
Wendy Gomez-Garcia - Clínica de Linfomas and LMA Cuidados Paliativos and Terapia Metronómica, Hospital Infantil Dr. Robert Reid Cabral, Santo Domingo, Dominican Republic
Richard Harding - Centre for Global Health Palliative Care, King’s College London, London, United Kingdom
Quach T Khan - Palliative Care Department, Ho Chi Minh City Oncology Hospital, Ho Chi Minh City, Vietnam
Phillippe Larkin - Institut universitaire de formation et de recherche en soins, Universite de Lausanne, Lausanne, Switzerland
Mhoira Leng - Department of Palliative Care, Makerere University, Kampala, Uganda
Emmanuel Luyirika - African Association for Palliative Care, Kampala, Uganda
Joan Marston - International Children's Palliative Care Network, Cape town, South Africa
Sebastien Moine - Health Education and Practices Laboratory, University Parisse, Villetaneuse, France
Hibah Osman - Palliative and Supportive Care Program at the American University of Beirut Medical Center, Beirut, Lebanon
Katherine Pettus - International Association for Hospice and Palliative Care, Houston, Texas, USA
Christina Puchalski - George Washington University's Institute for Spirituality and Health, Washington, District of Columbia, USA
M.R Rajagopal - Trivandrum Institute of Palliative Sciences, Trivandrum, Kerala, India
Dingle Spence - Hope Institute Hospital, Kingston, Jamaica
Odette Spruijt - Australasian Palliative Link International, Melbourne, Australia
Chitra Venkateswaran - Mehac Foundation, Kochi, Kerala, India
Bee Wee - Sir Michael Sobell House, Oxford University Hospital, Oxford, United Kingdom
Roger Woodruff - Melbourne, Australia
Jinsun Yong - College of Nursing Catholic, University of Korea, Seoul, South Korea
Tania Pastrana - Department of Palliative Medicine, University Hospital Aachen, Aachen, Germany
Publication Details: Journal of pain and symptom management, Vol.60(4), pp.754-764
Publisher: Elsevier Inc
Academic Unit: College of A&S; UMMG Department of Public Health Sciences Research; A&S - Miami Institute for the Americas
Language: English
Resource Type: Journal article
PMID: 32387576
Record Identifier: 991031578553502976